Talk Description
Institution: Head and Neck Cancer Australia - NSW, Australia
Aims
Treatment for Head and Neck Cancer (HNC) can cause significant facial disfigurement with major psychosocial, functional and financial impacts. Unlike breast or limb prostheses, no national funding scheme exists for external facial prosthetics, despite their essential role in protecting exposed tissue and restoring identity, function and quality of life. This project examined the financial burden associated with external facial prosthetics and identified priority areas for national policy reform.
Methodology
HANCA identified substantial funding gaps through literature on prosthetic rehabilitation, financial toxicity and out‑of‑pocket costs. An expert advisory committee of clinicians and consumers highlighted external facial prosthetics as the most immediate area for reform. HANCA implemented a national advocacy campaign, leading to an invitation from the Federal Government to submit a proposal for the May 2026 Budget.
Results
Evidence shows persistent financial toxicity for HNC survivors, worsened by limited access to prosthetics. HANCA’s advocacy elevated this as a critical survivorship issue and informed development of a Federal Government proposal. Budget outcomes will be presented.
Conclusion
Financial toxicity remains a major burden for HNC survivors. Equitable access to external facial prosthetics is now positioned as an urgent national policy priority, reinforcing the importance of survivorship care beyond treatment.
Presenters
Authors
Authors
Ms Nadia Rosin - , Ms Gemma Neary - , Ms Carolyn Smith - , Prof Bruce Ashford - , Ms Ashleigh Sharman -